Whether you suspect you may have endo, or you definitely have endo, or you know someone that has it, or you are just curious, it can be hard to understand much of what is online when it comes to endometriosis. It can easily seem hopeless and scary much of the time and there are conflicting stories and opinions about all sorts of things.
This section is here to hopefully help you navigate things a little better. Remember, analyze everything you hear critically. We at AEEP are endo patients and people who have gone through a lot. We are not doctors or drug companies. We are sharing what we have learned and conclusions we have come to, and from there you and your healthcare provider can come up with a plan that best suits you.
Many people with good intentions are spreading the myth that periods should never be painful. That is not totally accurate.
Why does American End of Endo Project exist? AEEP exists because having endometriosis is horrible and navigating care adds insult to injury. The whole thing totally sucks and it is easy to get lost or lose hope. AEEP exists to give information this is easy to understand and helpful.
Do you ever feel as though you are not heard or don’t even know what to say when you talk to a doctor?
If you do not have endometriosis (endo), you are still crucially important to driving change.
Clarifying medical terms Endometriosis versus Endometritis versus Endometrial Ablation versus Ablation of Endometriosis… Latin: Endo “inside” Metr- “uterus” Osis- “condition of” It is- “inflammation of” ——————————————————————– Ab- “away” Lat- “take” “Ablation”= “take away” Oh Latin roots, so helpful sometimes, but also so very confusing at others. This section is dedicated to helping you to…
In a world of conflicting stories, opinions, and supposed facts, how do any of us know what to believe anymore? There are conflicting ideas in every area of life. The world of endometriosis information is no different, except the difference in ideas could be extremely harmful. The following was written to encourage you to think…
“I thought it was a lady event”, some of the husbands apparently said when I hosted a pre-launch event for Endo Project at my house. Some of them ended up joining after our pleas, and some never did. I have nothing against any of these people, but this kind of thing is telling of a…
There is so much that goes into why people hurt when they have endo. This is one of the reasons why oftentimes, feeling better takes a lot more than one method of treatment. The following is an attempt to explain what we, the endo patients, have learned.